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Thursday, May 9, 2013

I'll be on the Blind Matters Radio Show this Saturday!

This Saturday, May 11th at 4:30 pm DST/EST, I will be a guest on the Blind Matters Radio Show to talk about my favorite person - Tommy!

You can listen to it live by going to their page - Blind Matters Radio Show and choosing Show Livestreaming. Go like the Blind Matters Radio Show Facebook page to keep up with the latest guests.

What is the Blind Matters Radio Show?
Blind Matters Radio Show is a talk show that caters to the interests of the blind and visually impaired. "What makes this show unique is that the host, many of the guests and some of the advertisers are also visually impaired or blind." - from the Blind Matters Radio Show website.

Call into the Blind Matters Radio Show to talk to us this Saturday, May 11th.
You can call into the show every Saturday from 3:00-5:00 pm EST at 800-788-9575. Call in this Saturday to ask a question or say Hello!

Hopefully Tommy will be feeling friendly. I want him to be able to talk a bit too. His first interview at three and a half years old. Not bad!

7 comments:

  1. wow!
    GOOD LUCK
    FRIENS,
    SHAYLA

    ReplyDelete
  2. may 9th 2013

    hello:
    My name is Shayla I am 23, and I live in Alaska. I was born 13 weeks early and had ROP stage 3 plus disease, which was cured by chryotherapy back in 1989! I became the 1st preterm infant to have the sight surgery work to keep my sight! So know more kids can see today.

    I had 20/75~20/80 ''low vision'' when I was a kid, which my eyes grew stronger as I got older. Today I am a fully sighted young lady who thanks the Lord I have my sight.

    I am ''very'' familiar with ROPARD, since I too was a preemie, they do such great work for sight saving. I found your son's blog by researching kids with ROP on ROPARD'S WEBSITE. I am so happy I did! Your son is such an amazing little guy with such determination and resilience! I wish him the best!
    I enjoy reading the goings on his blog too!
    I will continue to visit often.

    best wishes,
    Friend Shayla McCartney

    (you can read my ROP story at
    www.abcd-vision.org) to learn about ROP, Dr. Arnold or other eye conditions.

    ReplyDelete
    Replies
    1. Hi Shayla,

      So glad you found us and that you like the blog. As someone who has experienced low vision as a child, I would love to have your comments and ideas.

      ROPARD has a big place in my heart for sure. They are amazing!!! I can't believe that you had stage 3 plus ROP and that you have full sight today. That is incredible.

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    2. May 12th, 2013

      Thank you, I owe my gift of sight to God and Dr. Arnold. My sight is my truly my life!
      UPDATE:
      I went to my eye doctor last year in April, to get new eye glasses and he was concerned that when I get older I may develop ''narrow angle closure glaucoma'' so I am a glaucoma suspect as of now. In several weeks I will be going to the eye doctor again to see how things are. I am a little scared to see the results, but if it's God's will, I will continue too live one day at a time in HIS humble spirit.

      For we walk by faith, not by sight.

      If you want we can be email buddies:
      ( mccartneyshayla@gmail.com )
      PEACE THIS MOTHER'S DAY TO YOU!!

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    3. 5,12, 2013

      As a kid with low vision, I did feel depressed sometimes, because everyone around me noticed details better: colors, patterns etc.
      I think that kids who have low vision struggle more, but do very well with the tools that help them with their vision issues.

      I used lighted magnifiers to read text book print, used enlarged computer fonts, had to not do contacts sports because of possibility of retinal detachment, which I still do. I had enough vision to not use a cane.

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  3. Jessica, I enjoy reading all the wonderful things Thomas is doing. I've been following your blog since we found out our son was blind almost a year ago. My son is now 17 months and I'm struggling with how to help him now. We had a 'little room'. We have a TVI who is O&M certified, but my son is so afraid of moving through space. Did you blog when Thomas was really little? I'd love to pick your brain on how you got him up and moving. And about school. I'd love to find a place with an early education program for those with visual impairments and I'm not finding them in our home state of Texas. I just want him to have every possibility so he can be the best that he can be. Thanks.

    ReplyDelete
    Replies
    1. Hi Shelly,
      I'm so glad you said Hi. I started blogging when Tommy was a year and a 1/2 old. Where are you in Texas? I always hear great things about the Texas School for the Blind and Visually Impaired in Austin. It might not hurt to reach out to them. I understand they also provide educational support to districts all over Texas.

      Tom always loved movement and he spent a ton on time trying to stand up and then trying to take steps. He never really cruised but instead he spent his time right in the middle of the room and worked on standing up and taking little steps. Which is weird and all the TVIs/O&Ms agree.

      Try out a little trampoline. That really helped Tommy. We had one with a little padded bar he could hold onto. We have also always roughhoused with him. I think all of that helped him have a good understanding where his body is in space. I also carried Tommy everywhere. Even when he was quite a big guy. All that movement in non-threatening ways helps.

      Does your little dude like push toys? We had several and they are great for early O&M and exploring. He had a little train and then a mickey truck that he loved. We had one toy that had a brake so he got used to playing with the keys and sounds on it and then as he got more steady on his feet we released the brake and let him run around with it.

      But yeah. It's a process. Tommy loves movement and open spaces but he has trouble with eating and won't keep his head up. We work so hard on those.
      Feel free to email me and look at some of my older posts. I know I have some videos. I'll try and write a post on this soon!

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