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Sunday, March 4, 2012

How do I get a Lightbox? How do I get a Vision Therapist or TVI for my child?

If your baby or toddler is blind or visually impaired they should be getting Early Intervention services. Early Intervention is a program for children with developmental delays, ages birth to three, that provides in home therapy.  We knew Thomas was blind at birth so our pediatrician got the ball rolling to get Thomas signed up for Early Intervention. He had his evaluation when he was only a month old and we started in home therapy with a Teacher of the Visually Impaired (TVI) soon after.

If you believe your child is lagging behind in any way you can request to be evaluated by your local Early Intervention provider. This program is not just for children who have severe health problems! Talk to your pediatrician and ask for a referral to your local Early Intervention provider. If you are in Allegheny County and want to access Early Intervention services, please contact The Alliance for Infants and Toddlers at (412) 885-6000.

It starts with an in-home evaluation which will determine whether your child qualifies for Early Intervention services. Thomas started out with only services from a TVI but later added physical therapy, occupational therapy, nutrition and speech therapy.
Tom using his lightbox.
Tom's first TVI told us that, as a blind child, Thomas is eligible for federal quota funds and could receive free books and educational tools created specifically for blind children. Click here to read more about the Federal Quota.  She signed Thomas up and ordered Thomas a lightbox from the APH and the Level 1 materials kit. Tom also got the On the Way to Literacy: Book Set 1  and Book Set 2, which feature books with large print and Braille, with tactile illustrations.

One thing I suggest you request is APH's Word Associations Print-Braille Labels.

From the website

Introduce children to the world of reading by using these large print-braille stickers! Consists of 12 sheets of self-adhesive labels containing common words. For example, the large print-braille label chair can be placed on a chair to associate the word with the object. Includes 91 labels and a manual in either large print or braille.

Here we were using the window as a light box. See the braille label for window in the upper right?

If your child finds Braille everywhere they begin to understand that it has meaning and purpose. Sighted children find print words EVERYWHERE! You can give that opportunity to your blind child by putting labels around your home. I have them everywhere and most sighted people never notice. But Tom finds them! Be sure to put the labels at child height. And the guide that comes with the labels contains tons of ideas and information.

So get your TVI on the phone and start asking about getting your child signed up for the Federal Quota funds so you can access great educational tools for your child!

*Note - I updated the links page with Braille book resources.

13 comments:

  1. Here are a few more links not on your link page

    NFB Braille Reading Pals http://nfb.org/braille-reading-pals-early-literacy-program

    NBP Read Books Program

    http://www.nbp.org/ic/nbp/programs/readbooks/readbooks.html

    Braille Institute Braille Books for Children
    http://brailleinstitute.org/Services/Braille_Publishing/Braille_Books_for_Children.aspx
    (this took a few tries for them to finally send me a catalog but once you end up on the list you are all set)

    Also seedling not only has great prices but they also give blind/vi children 2 free books a year

    http://www.seedlings.org/bkangel2009.php

    For older kids
    American Action Fund Free braille book program
    http://www.actionfund.org/actionfund/Free_Braille_Books.asp

    I think thats it LOL I need to update my own links because I realize I didn't list most of these

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  2. Thanks, I found a federal quota ex officio person and fired off an email to join that wagon. Federal quota has been an elusive concept to me all this time. I hate missing opportunities, so thanks for talking about it.

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  3. I heard about quota funds but no one here will talk to me about them. I am in Tennessee and don't know who I need to talk to. My son will be 11 in April. The TVI doesn't help. School system wont help. pinchnmom@yahoo.com

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  4. Margaret. Your TVI not only knows about quota funds but is most likely using them. Check with your state and see who is the ex officio is for your state. They can tell you the procedures. My state has a lending library that uses federal quota funds. Parent can borrow from the "library" .. I found who the ex officios are for Tennessee and they are below. I am pretty sure you want the second one listed unless your child is a student at the school for the blind .

    TENNESSEE

    TENNESSEE SCHOOL FOR THE BLIND (Quota Account #188)
    Martin Monson
    Superintendent
    Tennessee School for the Blind
    115 Stewarts Ferry Pike
    Nashville TN 37214
    Phone: (615) 231-7316
    Fax: (615) 871-9312
    Email: martin.monson@tnschoolfortheblind.org

    TENNESSEE STATE DEPARTMENT OF EDUCATION (Quota Accounts #190 & #191)
    Carol McCarroll
    Consultant Resource Center for the Visually Impaired
    Tennessee School for the Blind
    115 Stewarts Ferry Pike
    Nashville TN 37214
    Phone: (615) 231-7406
    Fax: (615) 231-7408
    Email: Carol.McCarroll@tnschoolfortheblind.org

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  5. Wendy Patrone-MentzerMarch 10, 2012 at 2:57 PM

    Did you use hair gel in the swirly mats on your windows?
    mllewendy87@yahoo.com

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    Replies
    1. Hi Wendy-
      The homemade swirly mats on the window are just sandwich bags with some paint and canola oil squirted in to let the paint flow and squish a little better. I used regular sandwich bags that zip closed.

      The swirly mats we use on the lightbox are from the APH catalog. I hear the ones aimed at CVI kids are actually the coolest.

      Or you can make them yourself like this - here they used baby oil and water.
      http://www.playbasedlearning.com.au/2011/04/a-mixed-bag/

      Delete
  6. Wendy Patrone-MentzerMarch 10, 2012 at 7:01 PM

    Ahhh...ok I was at a workshop where they suggested hair gel and food coloring, but I think that paint and oil would be great. Thanks for the link for the baby oil one, too.

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  7. Wendy Patrone-MentzerMarch 11, 2012 at 7:18 PM

    I hope that this link comes through, ladies. It is suggestions for using a light box.

    http://www.tsbvi.edu/instructional-resources/78-50-ways-to-use-a-light-box

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  8. Hi, I am a Teacher of the Visually Impaired. I would like to clarify the difference between therapist and TVI. Vision Therapy is done by optometrists. TVI's are teachers with an endorsement in vision.

    Make sure you check with your state department for the blind. Also the NFB is a great resource. They can help you navigate the system. Each state handles their quota funds their own way, but materials are available to help students be successful in their curriculum. You are welcome to contact me since I don't work in the state where you live. :)

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    Replies
    1. Hi Gillian- Thanks for your comment. Yes. I know the difference between the vision therapy done by an optometrist and services provided by a TVI. In Early Intervention they often call the services of a TVI vision therapy. That is incorrect and leads to confusion but it is what many people know it as.

      And I agree. The NFB is great!

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  9. I emailed the person in charge of federal funds for the state of FL and instead of getting back to me they directed me to FL division of blind services. While enrolling my 8 month son in DBS I was told they don't have the funds to provide us with a light box if I want a vision teacher to come to the house once a month to every other month. Am I getting the run around? As of right now they don't even have a vision teacher willing to come to my town. Please help me if you can!! My email is grievesmegan@gmail.com.

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    Replies
    1. Hey Megan, I sent you an email. Let me know if you need more help.
      Jessica

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